Life changing gene therapy for babies with spinal muscular atrophy

23 October 2023 - The Australian Government is giving more families access to life changing gene therapy for spinal muscular atrophy ...

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Spinal muscular atrophy community rejoices as 'life-changing' drug Spinraza approved for adults

30 August 2022 - "I have hope again," says Juanita Vernon as the 52 year old tearfully discusses her feelings about ...

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Listing breakthrough brings hope for people with spinal condition

1 August 2022 - Adults with debilitating spinal muscular atrophy will for the first time have access to a subsidised ...

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First million dollar medicine listed on the PBS

4 May 2022 - Zolgensma has the great honour of being the first medicine listed on the PBS with a ...

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Genomics Australia to guide the future of genomic health and medicine over the coming decade

21 March 2022 - Through our 10 year Medical Research Future Fund (MRFF) plan, the Morrison Government is committed to ...

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Public Summary Documents – September 2021 PBAC meeting

24 December 2021 - The Public Summary Documents (positive recommendations and subsequent decisions not to recommend) from the September 2021 PBAC ...

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Recommendations made by the PBAC – September 2021 intracycle meeting

15 October 2021 - First PBAC recommendation for a new gene therapy. ...

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PBAC Public Summary Documents (first time decisions not to recommend, deferrals and other matters) – May 2021 meeting

10 September 2021 - The Public Summary Documents (first time decisions not to recommend, deferrals and other matters) from the May ...

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Recommendations made by the PBAC - November 2020

18 December 2020 - The recommendations from the November 2020 PBAC meeting are now available. ...

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Life-saving spinal muscular atrophy medicine to be made available to Australian babies

15 November 2020 - Access to a life-saving and life-changing medicine will soon be expanded for Australian children and infants with ...

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Call to reduce ‘scary’ gene therapy costs

28 November 2019 - Health care funders have been urged to overcome the “scary” cost of emerging gene therapies that ...

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'Healthy lottery' fears as Novartis plans to give away world’s most expensive drug

19 December 2019 - Novartis aims to give away 100 doses of its $US2.1 million-per-patient ($3.05 million) Zolgensma for spinal ...

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Three-year-old Matilda's ability to walk is giving hope to those with spinal muscular atrophy

18 September 2019 - The disease, which has been described as motor neurone disease for children, is the leading cause of ...

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Life-changing drug Spinraza for spinal muscular atrophy patients costing adults at least $500,000

29 August 2018 - In a small lounge in Essendon, with his parents by his side, Chris Kessaris sat in ...

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Guaranteeing essential services - record investment in health

8 May 2018 - The 2018–19 Budget is guaranteeing the essential health services that Australians rely on, with a $12.4 billion ...

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