Today is Rare Disease Day

29 February 2024 - PHARMAC understands that people living with rare disorders face many challenges, including access to health care ...

Read more →

PHARMAC calls for applications for medicines for rare disorders

13 November 2023 - PHARMAC is calling for applications for medicines to treat rare disorders.  ...

Read more →

PHARMAC’s Rare Disorders Advisory Committee makes new recommendations for funding

10 August 2023 - PHARMAC has published the record of the March Rare Disorders Advisory Committee meeting, sharing details on ...

Read more →

Our progress in the funding of medicines for rare disorders

3 March 2023 - PHARMAC will hear from people affected by rare disorders in its upcoming Rare Disorders Advisory Committee meeting ...

Read more →

PHARMAC shares the agenda items for the upcoming Rare Disorders Committee meeting

27 February 2023 - PHARMAC is creating visibility of what medicines are being considered that could impact the rare disorders ...

Read more →

Kiwis with rare disorders want faster progress on 'life or death' health strategy

6 November 2022 - For Samantha Lenik, being diagnosed with Pompe​ disease after seven years of symptoms was a “double-edged ...

Read more →

Cancer, rare disorder advocates call for more radical change after damning PHARMAC review

2 June 2022 - Radical action is needed urgently to tackle the delays patients face in getting the latest drugs for ...

Read more →

Statement from Rare Disorders NZ re Minister Little's comments on PHARMAC funding

31 March 2022 - Rare Disorders NZ is extremely frustrated to hear the Minister of Health this week dismiss the call ...

Read more →

PHARMAC 'cruel' for failing to fund drugs for rare illnesses — advocate

14 July 2021 - New Zealand’s drug-buying agency doesn’t value the lives of all people equally, according to those advocating for ...

Read more →

Masterton woman feels abandoned after medical funding rejected

9 April 2021 - Masterton's Allyson Lock feels she is not part of the "team of five million" after her ...

Read more →

Evaluating New Zealanders’ values for drug coverage decision-making: trade-offs between treatments for rare and common conditions

8 January 2021 - The objectives of this study were to measure the relative societal importance of values of New Zealanders ...

Read more →

PHARMAC funding increase "extremely disappointing"

11 May 2020 - Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding ...

Read more →

Recent PHARMAC funding decisions

22 April 2020 - You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding ...

Read more →

Everyone wants to help, but still the red tape prevents Dylan Barker getting medicine

25 February 2020 - Dylan Barker lives with a rare genetic condition turning muscles, tendons and ligaments to bone, locking ...

Read more →

Mum says 'miracle' drug saved ill baby Kaan Hunter's life

21 January 2020 - A baby who was given only four months to live after being diagnosed with an extremely ...

Read more →