Children and teenagers with an aggressive form of brain cancer set to benefit after NICE recommends new life-extending drug combination treatment

24 April 2024 - A new targeted drug combination treatment, described as a ‘step-change in care’ for children and young ...

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Funding process for child cancer medicines to remain

15 March 2024 - Pharmac has decided to keep Rule 8.1b, which allows medicines for treating children with cancer to ...

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Sudbury, Ontario family finally gets coverage for drug to treat daughter's rare epilepsy

16 January 2024 - Fenfluramine costs more than $3,000 a month and is not approved by Health Canada. ...

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Medicines lobby says the PBS has not kept up with advances — or approvals — in medicines

8 December 2023 - Little Jack Roche was five weeks old when diagnosed with cystic fibrosis. The medication that could help ...

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Vosoritide in achondroplasia: indication of an additional clinical benefit for children aged two and over

1 December 2023 - Two small RCTs with children of different ages together make it possible to make one statement: the ...

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Burosumab for the treatment of adults with X-linked hypophosphataemia

29 November 2023 - The Department of Health and Social Care has asked NICE to produce guidance on the use ...

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PHARMAC asked to reconsider funding RSV drug for at risk babies

9 November 2023 - Paediatricians and neonatal experts are pleading with PHARMAC to rethink its decision to stop funding a ...

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Life changing gene therapy for babies with spinal muscular atrophy

23 October 2023 - The Australian Government is giving more families access to life changing gene therapy for spinal muscular atrophy ...

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1 November 2023 changes to the PBS listings of medicines for children and adolescents with chronic plaque psoriasis

23 October 2023 - On 1 November 2023, changes will be made to the authority requirements of the PBS listing ...

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Mum vows to keep pushing for fenfluramine PBS listing for Dravet syndrome, a severe form of epilepsy

5 September 2023 - Families calling for greater access to a medication that helps manage a severe form of epilepsy ...

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Semaglutide for the treatment of overweight and obese adolescents

13 July 2023 - NICE is unable to make a recommendation on the use of semaglutide (Wegovy) on the NHS for ...

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RACGP welcomes asthma puffer decision saving Aussie families time and money

15 May 2023 - The Royal Australian College of GPs (RACGP) has welcomed the PBAC's decision to remove limitations requiring ...

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PBAC backs ongoing access to low-dose asthma puffer for Aussie kids

12 May 2023 - The independent, expert group advising the Australian Government on PBS medications has reviewed its recommendation to put ...

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Life changing cystic fibrosis treatment now available to children 6 years and above

6 April 2023 - From 1 May 2023, children aged 6 to 11 with cystic fibrosis will have access to ...

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PHARMAC shares next steps in reviewing rule 8.1b

5 April 2023 - PHARMAC’s consultation on rule 8.1b of the Pharmaceutical Schedule has now closed. ...

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