Co-design of an enhanced consumer engagement process

18 March 2024 - A consumer-led Co-design Working Group has developed proposed recommendations for enhancing consumer engagement processes to enable ...

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Ethical and legal considerations in social media research for health technology assessment: conclusions from a scoping review

20 October 2023 - The objective was to identify and describe the published guidance and current academic discourse of ethical issues ...

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Patient and citizen participation at the organisational level in health technology assessment: an exploratory study in five jurisdictions

8 August 2023 - While patient participation in individual health technology assessments has been frequently described in the literature, patient and ...

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PHARMAC welcomes Myeloma NZ as first patient advocacy group to present to PTAC

21 November 2022 - Myeloma New Zealand presented directly to PHARMAC’s Pharmacology and Therapeutics Advisory Committee (PTAC) on Thursday, making ...

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The patient voice – the value of patient-reported outcomes in HTA

4 August 2022 - The patient’s voice is increasingly important in securing access for therapies in markets and demonstrating how ...

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Mentoring as a potential means to assist consumer representatives contribute effectively to the assessment of health technologies in Australia: a pragmatic review

7 February 2022 - This project was implemented on behalf of the Health Technology Assessment Consumer Consultative Committee to explore training ...

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Analysis of consumer comments into PBAC decision-making (2014–9)

4 February 2022 - Our objective was to analyse and review consumer comments in the PBAC's decision-making process. ...

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Bringing a consumer perspective to clinical advice

19 October 2021 - PHARMAC is making changes to the way its advisory committees work to strengthen the input of ...

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Consumers to have more say on medicine access issues

7 September 2021 - Consumer involvement in Australia’s medicines choices has been further strengthened under a new strategic agreement Medicines ...

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How to balance the patient voice atop the shifting plates of HTA

3 August 2021 - The tectonic plates of healthcare technology assessment have shifted – but where does the patient voice ...

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How to integrate evidence from patient preference studies into health technology assessment: a critical review and recommendations

15 July 2021 - Health technology assessment agencies vary in their use of quantitative patient preference data and the extent to ...

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Moving patient stories highlight opportunities to strengthen our health care systems for all Australians

24 June 2021 - It was an emotional evening among the nearly 200 in-person and online attendees at Parliament House last ...

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How the patient voice is becoming vital for drug approval

14 June 2021 - Rebecca Sanders from Lipodystrophy UK tells us how the patient voice helped convince NICE to approve a ...

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Development of an international template to support patient submissions in health technology assessments

1 April 2021 - The objective was to develop an international template to support patient submissions in health technology assessments.  ...

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The contribution of French patient and consumer groups to health technology assessments over a 2 year period: an observational retrospective study

22 March 2021 - In 2017, The French National Authority for Health created an open, online, systematic contribution process to enable ...

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