12 March 2018 - Drug for patients with cystinosis being replaced by new form with same active ingredient.
Across Canada, dozens of parents are shaking their heads in disbelief that Health Canada is making them switch their sick children to a drug that costs more than $300,000 a year. Especially when they've been happily using an older version of the same drug that costs a fraction of the price.
"It's a ridiculous spot to put parents in," said Trevor Strauss, of Waterloo, Ont., who was stunned to learn that access to his daughter's life-saving drug was being cut off now that a new, more expensive version of the same drug had been approved by Health Canada.