Life-changing drug remains unfunded

Otago Daily Times

1 July 2020 - Knowing his body is slowly deteriorating is ‘‘the scariest feeling ever’’.

However, what is worse for Ryan O’Rourke is that a drug that could help him is not funded by PHARMAC.

PHARMAC is a New Zealand Crown entity that decides which medicines and pharmaceutical products are subsidised for use in the community and public hospitals.

Ryan said he was about 5 when he was diagnosed with spinal muscular atrophy type 3.

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Michael Wonder

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Michael Wonder