Posted by Michael Wonder on 01 Jul 2020
Life-changing drug remains unfunded
1 July 2020 - Knowing his body is slowly deteriorating is ‘‘the scariest feeling ever’’.
However, what is worse for Ryan O’Rourke is that a drug that could help him is not funded by PHARMAC.
PHARMAC is a New Zealand Crown entity that decides which medicines and pharmaceutical products are subsidised for use in the community and public hospitals.
Ryan said he was about 5 when he was diagnosed with spinal muscular atrophy type 3.
