Posted by Michael Wonder on 11 Jun 2019
MPs to debate cystic fibrosis drug Orkambi in Parliament
10 June 2019 - A debate is due to take place in Westminster about a drug for people living with cystic fibrosis to be made available on the NHS.
Cystic fibrosis, affects around 10,000 people in the UK and causes a sticky mucus to build up in the lungs and digestive system.
Campaigners want the precision drug Orkambi available to patients - but the UK Government is currently locked in negotiations over the cost of the drug with pharmaceutical firm Vertex.
