28 February 2022 - The ALS Society of Canada Cana today marks Rare Disease Day 2022 by calling on the Ontario government to champion the urgent need for faster access to approved therapies for people living with amyotrophic lateral sclerosis – a devastating terminal disease that gradually paralyses people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will.

"While today represents an important opportunity for all rare disease communities to raise awareness about the need for health policy change, every minute of every day is critical for people living with amyotrophic lateral sclerosis who are awaiting access to treatment," said Tammy Moore, CEO of ALS Canada. "When you consider the average life expectancy of amyotrophic lateral sclerosis is only three years post diagnosis, it is clear the current drug approval and reimbursement processes in Canada do not function in a way that reflects the realities of living with this disease."

Read ALS Canada press release