20 May 2019 - Just last week, an 18-year-old woman with a rare cancer was staring down the barrel of paying $7000 a month for a medicine she needs to treat her condition.

Rare Cancers Australia chair Richard Vines knows this because a clinician contacted his organisation in hopes of finding a way to alleviate the woman's costly burden.

"It's her only chance," Mr Vines told AAP.

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