Posted by Michael Wonder on 05 Jul 2018
B.C. charity fights feds for access to life-saving medicine
5 July 2018 - Cure SMA Canada is urging the federal government to reimburse the costs of Spinraza.
When Susi Vander Wyk gave birth to her daughter Holly in 1996, the last thing the young mother imagined was that her baby would be diagnosed with the largest genetic killer of children under the age of two in the world: spinal muscular atrophy.
But that’s exactly what happened.
