Posted by Michael Wonder on 28 Aug 2019
Batten disease treatment: parents can take fight to High Court
28 August 2019 - Two sets of parents of children with a rare degenerative disease can take a fight for treatment to the High Court.
The four children, from Newcastle and Cheshire, have Batten disease, which is incurable and causes seizures, visual impairment and mobility loss.
Their parents have been refused NHS funding for a drug which could slow its progression.
NICE said it could not be certain it was value for money.
