Posted by Michael Wonder on 18 Jun 2019
Buyers’ Club wants government support on Orkambi imports
17 June 2019 - Proposes three point plan to work round impasse.
Patient activists in the UK have called for government support to work round the deadlock over Vertex’s cystic fibrosis drug.
The Cystic Fibrosis Buyers’ Club has asked health secretary Matt Hancock to help patients circumvent Vertex and find alternative ways to gain access to Orkambi – including the import of generic versions of the drug from Argentina.
