21 October 2024 - Canada’s Drug Agency is pleased to announce the successful applicants from our 2024 Request for Proposals (RFP) to support the enhancement of rare disease registries in Canada.
The awarded rare disease registries span diverse disease areas and will undertake varied improvement initiatives, all with the goal of generating high quality and fit for purpose data that can be used to help answer regulatory and reimbursement questions related to drugs for rare diseases.