2 June 2017 - Twelve-year-old Canberra girl Bella Mitchell is more than aware how lucky she is to be on a trial for the cystic fibrosis drug, Orkambi, even knowing that, any day, access to it could end and the only way she could continue to take the drug would be by her parents somehow paying $250,000 a year for it.

The young Canberra Girls Grammar student says the impact of the drug on her health has been remarkable and she wants every young Australian who needs Orkambi to have it, even writing last year to then federal health minister Sussan Ley to plead her case for the drug to be put on the Pharmaceutical Benefit Scheme and its cost subsidised by the government.

"Being on the Orkambi drug trial has meant so much in terms of my health," Bella wrote in her letter to the minister.

"I have put on weight, am breathing well and have stayed out of hospital.

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