Posted by Michael Wonder on 29 Mar 2017
Charities unite to oppose NICE rare disease rules
28 March 2017 - Nearly 200 rare disease patient groups have come together to call on NICE and NHS England to reconsider plans for a new cost-effectiveness threshold for rare disease drugs.
Campaigners say the new rules will drastically reduce access to new medicines for rare diseases in England – which they say will make a bad situation even worse.
Rare Disease UK and Genetic Alliance UK are leading the coalition, and have called for a pause in the implementation of the plans, and for a consultation and impact assessment of the proposals.
