Posted by Michael Wonder on 15 May 2019
Cystic fibrosis drug campaign makes no progress in year
10 May 2019 - It is a year on from the delivery of more than 1,000 letters to Downing Street, many of them from children, pleading for access to a cystic fibrosis drug, called Orkambi. But there is still no decision on whether it will be made available on the NHS.
At the time, in May 2018, Prime Minister Theresa May said there was an ongoing dialogue with the drug company Vertex and she hoped for a "speedy resolution to the negotiations".
Yet, despite months of talks, no agreement has yet been reached.
