Cystic fibrosis drug Orkambi in PBS decision: Moree family share story

The Northern Daily Leader

5 May 2018 - A Moree couple have added their voices to cries for a life-changing and life-giving drug to be added to the Pharamaceutical Benefits Scheme – one that could double their son’s years.

As a five-year-old boy with cystic fibrosis, Alexander Dunlop’s life expectancy is just 37 years without Orkambi, which targets the cause of the disease but costs $250,000 a year.

Now his parents Simon Dunlop and Katrina Martin, along with more than 1000 other families, have a tense wait as negotiations continue to have it listed and made affordable.

Read The Northern Daily Leader article 

Michael Wonder

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Michael Wonder