Posted by Michael Wonder on 16 Oct 2018
Cystic fibrosis patients worry about future of 'life-changing' drug
16 October 2018 - A drug review body has recommended the drug not be covered by public benefit programs.
Diagnosed with cystic fibrosis at six months old, Sylvie van Geel never expected to live past 19: the same age her big sister was when she passed away from the condition.
Instead, the 51-year-old Londoner is alive and says she's feeling better than ever, thanks to the cystic fibrosis drug Orkambi, which she began taking February last year.
