Posted by Michael Wonder on 12 Oct 2022
Cystic fibrosis: Rotorua mother gives PHARMAC a year to fund Trikafta before moving overseas
13 October 2022 - A desperate Rotorua mother has been told by her doctor to consider getting a lung transplant after being hospitalised for the third time this year.
Natalie Wineti has cystic fibrosis — a genetically inherited and terminal condition — but the $330,000/year "miracle drug" to treat it, Trikafta, is not funded in New Zealand.
