Posted by Michael Wonder on 22 Jan 2017
Cystic fibrosis sufferer Scarlet Fox 1 million dollars away from access to life-changing drug Kalydeco
21 January 2017 - As a two-year-old living with cystic fibrosis, Scarlet Fox is $1 million away from access to a drug that could significantly improve and extend her life.
The Bellerive toddler is one of 30 young children from around Australia who is being denied a potentially life-changing drug because it is unaffordable.
Their families and supporters are preparing to take their case for the drug to be listed on the Pharmaceutical Benefits Scheme to Canberra, where they will protest at Parliament House and present a petition to the Prime Minister.
