Posted by Michael Wonder on 28 Aug 2018
Data enclaves for sharing information derived from clinical and administrative data
28 August 2018 - The promise that big data will transform health care has yet to be fulfilled.
Even though essentially all medical care now leaves an electronic trail, data are underused as a way to create knowledge about the safety and effectiveness of medical treatments, the generalisability of care practices, and the effects of medical coverage policies. National leaders have called for greater use of electronic data to generate evidence.
For example, the National Institutes of Health’s strategic plan for data science anticipates an important role for clinical data, and the 21st Century Cures Act requires that the US FDA increase its use of evidence from clinical practice settings. The National Academy of Medicine has proposed a virtual health data trust, asserting that clinical data should be a core utility. Yet these calls for increasing data use are occurring even as public concern is rising about secondary use of personal information.
