Posted by Michael Wonder on 14 Mar 2021
Doctors unlawfully denied drug to girl with spinal muscular atrophy, appeal court rules
5 March 2021 - Decisions made by two consultants to deny a 10 year old girl with type 3 spinal muscular atrophy the chance of treatment with a potentially life changing drug were “unlawful” and “irrational,” three Court of Appeal judges have ruled.
Imelda Hughes, a consultant paediatric neurologist at Manchester University Hospitals NHS Foundation Trust, and Mariacristina Scoto, a consultant in neuromuscular translational research at Great Ormond Street Hospital for Children NHS Foundation Trust, decided that Sophie Basma did not meet the criteria for treatment.
