Posted by Michael Wonder on 15 Jun 2022
EFPIA-EURORDIS joint statement on patient access to medicines for rare diseases
15 June 2022 - Today marks the publication of the EFPIA-EURORDIS joint statement on patient access to medicines for rare diseases.
The statement is based on an 18 month structured dialogue between the two organisations focused on identifying proposals that can improve access to orphan medicines across Europe.
At the same time the statement recognises areas where the two organisations have different perspectives.
