Families plead for PBS listing for ‘life-saving’ cystic fibrosis drug

Mercury

8 May 2021 - A new drug is being hailed as a “game-changer” for cystic fibrosis sufferers as the government is urged to add it the Pharmaceutical Benefits Schedule to reduce the $277,000-a-year cost.

Tasmanian sufferers of cystic fibrosis and their families have launched an impassioned plea to Australian authorities over a game-changing drug used to treat the debilitating disorder.

The Australian Pharmaceutical Benefits Committee has deferred the listing of Trikafta on the Pharmaceutical Benefits Schedule, amid calls during May’s Cystic Fibrosis Awareness Month for it to be made more affordable.

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Michael Wonder

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Michael Wonder