31 March 2022 - On Monday 28 March, Carmen Shanks presented her Parliamentary Petition to MP Shanan Halbert, urging the Government to fund Trikafta, the first medicine that can treat the cause of cystic fibrosis for the majority of those who have the condition.

Since Carmen’s petition was presented, cystic fibrosis and Trikafta have been the source of many news stories across various channels. While this has heightened awareness, Cystic Fibrosis NZ is disappointed that some of the discussions include statements that are simply incorrect.

Read Cystic Fibrosis New Zealand press release