4 May 2025 - For the Sutton family, finding a drug that controlled four-year-old daughter Layla’s rare form of epilepsy was a mixed blessing. The benefits were amazing but the cost — $7,500 for a single bottle — was brutal. Now all that has changed.

Four year-old Layla’s cheeky grin hides the battle she’s bravely fought for almost her entire life, but now there’s an extra reason to smile.

The little girl was diagnosed with Dravet syndrome, a rare form of epilepsy, after experiencing her first seizure during a nappy change aged just 5½ months old.

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