Posted by Michael Wonder on 17 Oct 2017
Health Canada gives 'kiss of death' to planned policy for rare-disease drugs
16 October 2017 - The framework was announced by the Harper government in 2012, but sat on the back burner since then. Health Canada recently deleted all references from its website.
Health Canada has quietly deleted from its website all references to a planned framework for rare-disease drugs that dates back to 2012 and was intended to improve the availability of such drugs in Canada.
Canada is one of the only developed countries without a regulatory framework for rare-disease drugs, also known as orphan drugs.
