27 April 2016 -  A Sunshine Coast mother has failed in her attempt to have the Federal Government list on the PBS a drug that would vastly improve her 10-year-old daughter's life.

The decision, based primarily on cost, condemns Year 5 Nambour Christian College student Evie Marshall to an uncertain future.

Each year at home, the cystic fibrosis patient undergoes 1100 hours of physiotherapy and nebuliser use for lung function, takes 15,500 tablets, attends more than 70 doctor appointments, endures 730 insulin injections and misses between 40 and 60 days of school.

In a decision released last week by the Pharmaceutical Benefits Advisory Committee, PBS listing of the drug was refused "based on an unacceptably high and uncertain incremental cost-effectiveness ratio at the requested price by the sponsor, and uncertainty around the impact of the drug on long-term improvements in lung function and survival".

For more details, go to: http://www.sunshinecoastdaily.com.au/news/excessive-drug-cost-hits-evie/3008884/