Posted by Michael Wonder on 06 Nov 2022
Kiwis with rare disorders want faster progress on 'life or death' health strategy
6 November 2022 - For Samantha Lenik, being diagnosed with Pompe disease after seven years of symptoms was a “double-edged sword”.
“It was a relief to know it wasn't all in my head and that there was something going on,” she said of the rare genetic muscle-wasting disorder.
