16 February 2021 - Lupin is disappointed that NICE has published an Appraisal Consultation Document recommending not to approve NaMuscla (mexiletine) for routine funding to treat symptomatic myotonia in adults with non-dystrophic myotonic disorders in England and Wales.
The Scottish Medicine’s Consortium approved the funding of Namuscla in December 2020 through its orphan drug PACE process. Lupin believes patients living with symptomatic non-dystrophic myotonic disorders have the right to licensed treatment choices that improve their lives.