Posted by Michael Wonder on 11 Apr 2021
Masterton woman feels abandoned after medical funding rejected
9 April 2021 - Masterton's Allyson Lock feels she is not part of the "team of five million" after her petition to get government medical funding for a rare disease she has was rejected last week.
Lock has Pompe, a disease that weakens people's core muscles, making it difficult to breathe. It also affects the legs.
Lock – who was diagnosed with Pompe in 2010 – is one of only 11 people in New Zealand with the disease.
In May 2019, Lock lodged a petition with the Government to get PHARMAC to fund Myozome, which is the only approved medicine in the world available to treat Pompe.
