30 July 2019 - Rare Disorders NZ welcomes the National Party’s recent announcement on cancer care but calls on both the opposition and the coalition government to widen their medicines access proposals beyond cancer to include provision for people living with rare disorders.
“Too often New Zealanders with a serious uncommon health condition fall between the cracks and don’t get the health care they deserve,” says Chief Executive of Rare Disorders NZ Lisa Foster.
“For truly integrated universal healthcare in New Zealand we must have a cohesive approach to health which is based on need, not just on a specific condition or diagnosis.”