Montreal woman with ALS fights for Canadian access to new drugs

Montreal Gazette

28 December 2017 - 'Please help us get access. ALS is a fatal disease and it goes fast,' Montrealer Nancy Roch wrote to Prime Minister Trudeau.

“Come this way,” said a private nurse, leading the way to the dining room where Nancy Roch was installed.

Roch would have come to the door herself, but she was attached to an intravenous drip hanging from a chandelier in her Montreal apartment. The former head of French-language programming at Radio-Canada, Roch is on an experimental drug for ALS that she bought after tracking the drugmaker to Japan.

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Michael Wonder

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Michael Wonder

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