11 May 2019 - A number of MPs are calling on a drug company to make a "life-changing" treatment affordable to UK patients.
Citing a BBC Newsnight report, MPs across several parties have written to BioMarin, which markets Kuvan but did not initially discover it.
The drug, which helps people who have PKU - a rare inherited disorder - is currently not available to NHS patients, as it costs £70,000.
BioMarin says the NHS has not accepted its "very competitive" offer.