12 October 2018 - At just 29 years of age, doting mother Kate McKenzie has faced more battles than anyone should.

When she was 20, the Brisbane woman was diagnosed with a rare genetic condition which causes tumours to grow all through her body.

Three years ago doctors discovered a cancerous tumour on her brain, linked to the condition.

Doctors have told Kate her only option now is a drug called sorafenib which has proven to work on patients with desmoid tumours in America.

While Kate has started taking the drug, it's not cheap, costing around $100,000 a year or $3,500 a box.

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