Posted by Michael Wonder on 15 Apr 2026
My brother can’t access a just approved breakthrough drug for his rare disease
14 April 2026 - A new therapy for Hunter syndrome highlights the inequities of age-based approvals.
For most of my life, my family has been advocating for therapies to help my twin brother. While the recent approval of a new drug should give us reason to celebrate, there is still more work to do.
