9 August 2017 - The first Lauren Poole had heard of epithelioid sarcoma was the day she was told her thumb had to be amputated to save her life.
The tiny lump on the tip of her thumb had been innocuous enough. But her instincts told her to have it removed and tested.
A radical new report offers the federal government a road map for addressing inequitable access to rare and less common cancer treatments.