16 May 2021 - Edward Lee​ and Reese Robertson​ both have cystic fibrosis.

But while Lee, 38, is making plans for the future including building a home and family, Robertson, an 18-year-old first year university student, is not expected make it to 40.

This is because Lee is able to buy breakthrough drug Trikafta, spending $430,000 a year on the medicine which helps him stay alive.

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