Posted by Michael Wonder on 12 Aug 2019
‘Not acceptable’ disappointment as cystic fibrosis drug not approved in Scotland
12 August 2019 - People with cystic fibrosis in Scotland will continue to be denied potentially life-extending drugs after they were rejected for use by the NHS, prompting an outpouring of dismay and anger.
The Scottish Medicines Consortium said it had heard “powerful testimonies” from patients about the impact of Orkambi and Symkevi but had doubts over their cost-effectiveness.
Hundreds of Scots suffering from the disease, which is caused by a faulty gene and can be totally debilitating, had been hoping that the body would approve the two drugs.
