Posted by Michael Wonder on 25 Apr 2019
NZORD supports rare medicine petitions to government
23 April 2019 - The National Organisation for Rare Disorders supports petitions for more effective, equitable outcomes for people with rare disorders, as part of a comprehensive, strategic approach for this vulnerable group of over 377,000 New Zealanders, half of whom are children.
“These petitions are clear symptoms of a need for a more effective, transparent approach to health and intergenerational wellbeing in New Zealand,” says NZORD Chief Executive Gill Greer.
“We recognise the many demands on the government’s budget but no New Zealander should have to move to Australia to access specific life-changing medicines,” says Dr Greer. “New Zealand lags behind other countries in the OECD regarding diagnosis and access to treatment, and recognition of the need for a comprehensive, cohesive framework and action plan.”
