11 May 2020 - Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding by $160 million over four years.
In real terms this amount is a drop in the ocean of unmet need for adequate medicine funding in New Zealand, and will not help people living with a rare disorder.
The $10 million increase for the next financial year will not even be enough to enable the status quo, considering the extra costs due to the current crisis.