1 June 2019 - PHARMAC is being threatened with legal action to fund a drug that will save the lives of around 25 Kiwi children with a rare motor neurone disorder.

While one family is considering going to Australia to get the drug, another Kiwi teen wants to return home, but can't.

Eight-year-old Logan Cho loves football, but he has a genetic disorder that could put him in a wheelchair by the time he's a teenager.

It's called spinal muscular atrophy, SMA, a childhood motor neurone disease which robs people of the ability to walk, eat and breath.

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