15 March 2018 - The cost of a life-saving drug to treat cystinosis — a rare disease affecting probably 100 people across Canada — is soon to rise from $10,000 per year to more than $300,000 annually.

The new form of the drug, Procysbi, contains the same active ingredient as the old form of the drug, Cystagon. It differs only in that it contains a new coating, enabling a slower release of chemicals into the body.

Reforms to the Patented Medicine Prices Review Board, a federal agency that sets a maximum introductory price for new patented drugs, could help rein in this type of increase.

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