Posted by Michael Wonder on 16 May 2018
PM urged to back access to ‘life-saving’ drug for children with cystic fibrosis
16 May 2018 - Hundreds of children plagued by a life-shortening disease have written to the Prime Minister begging her for access to a “life-saving” drug.
More than 1,000 personal letters are to be delivered to 10 Downing Street, imploring Theresa May to intervene and help patients with cystic fibrosis get access to Orkambi.
Around three quarters of the letters have been written by children with the condition.
