Posted by Michael Wonder on 23 Jun 2021
Rare disease patient advocates continue battle for affordable drugs
23 June 2021 - Beth Vanstone, mother of local Cystic Fibrosis Warrior Madi Vanstone and director of the CF Get Loud campaign, is desperately hoping to get the word out about the changes coming for Canadians when the new Patented Medicine Prices Review Board rules come into effect on July 1.
Vanstone has experience in working with both government and drug companies on rare disease drug approvals. Seven years ago, Madi made headlines when she approached then-premier Kathleen Wynne and persuaded the Ontario government to approve coverage for her life-saving drug, Kalydeco.
