16 January 2017 - Matt George remembers vividly how it felt to receive his first infusion of Soliris, a drug that is among the most expensive in the world.

Six years ago, he walked into a clinic in Burlington, Ontario., worried the treatment would hurt or fail to ease the symptoms of a rare blood disease that, on bad days, left him so fatigued he could not get out of bed to go to the bathroom without help.

“Within 10 minutes of that infusion starting, I could start to feel the relief in my body,” Mr. George said. “I felt like someone pulled a plastic bag off my face. I could taste the air again. I could breathe again. The fatigue lifted off of me like someone lifted a car off my chest.”

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