Posted by Michael Wonder on 05 Feb 2017
Riverina mother to tackle government over PBS' refusal to list cystic fibrosis drug
5 February 2017 - A government decision to keep a revolutionary drug out of the hands of desperate parents has been slammed by a frustrated Riverina mother.
Temora nurse Renae Golder has two children with Cystic Fibrosis, a debilitating disease that requires extensive treatment and greatly reduces lifespan.
Until recently, doctors could only manage the symptoms, but a drug called Orkambi targets the underlying genetic condition in some sufferers, reducing the severity of the condition.
The only problem is that the drug costs between $260,000 and $300,000 per year.
