2 February 2014 - He's only five and has a deadly disease he can't yet pronounce. It would cost us $240,000 a year for the only drug that will save him – but who should pay? This is the battle to keep one cheeky, gap-toothed, puppy-loving special little boy alive.

For more details, go to: http://www.heraldsun.com.au/news/special-features/little-boy-big-disease/story-fnl1gf6j-1226812042809