Posted by Michael Wonder on 31 Mar 2022
Statement from Rare Disorders NZ re Minister Little's comments on PHARMAC funding
31 March 2022 - Rare Disorders NZ is extremely frustrated to hear the Minister of Health this week dismiss the call to increase funding for PHARMAC to fund the medicines on its Options for Investment list due to budget constraints.
His comments were in response to a 43,000 strong petition calling for the Government to fund the life-changing drug Trikafta for people living with the rare condition cystic fibrosis.
