Taking new steps to meet the challenges of rare diseases — FDA marks the 11th Rare Disease Day

FDA

26 February 2018 - Today 30 million people in the United States – or one out of every 10 Americans – lives with at least one of more than 7,000 rare diseases. 

These conditions include rare cancers to inherited metabolic disease. And tragically, half of those affected by rare diseases are children.

This week, the U.S. observes the last day of February as Rare Disease Day to raise awareness about rare diseases and their impact on patient’s lives. Unfortunately, finding treatments for these conditions does not become easier or less costly with the rarity of a disease.

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Michael Wonder

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Michael Wonder

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Medicine , US , Orphan drug , Regulation